These guidelines for the sharing of data generated by scientists in India using modern biotechnological tools and methods provide broad guidelines with specific insights into modern high-throughput, high-volume data.
Initiative overview
The Government of India invests a large amount of money to generate data in various sectors, including the biotechnology sector. These data are generated in the context of furthering knowledge, gaining deeper insights into biological and other processes and for translation. Ultimately, all data are to be used for the benefit of humankind; that is the major reason for investment of public funds to generate data. Sharing of data maximizes the collective utility of data.However, there are many issues that must be taken into account in the context of datasharing, the most important of which is that data-sharing must be done in a responsible manner. Data may induce vulnerability to individuals and to populations. The rights to privacy and confidentiality of individuals and populations must be protected as emphasized in the U.N. Declaration of Human Rights, and no harm must be done to them as a result of data-sharing.This document provides a framework and principles for sharing of data while protecting the rights of individuals and populations and without causing any harm to them.